Living with Lymphoedema
October 30th, 2008 by Peta | 5 Comments | Filed in Managing Lymphoedema
There are about 100,000 people in this country affected by a relatively little known condition called Lymphoedema.
Lymphoedema is a swelling that develops as a result of an impaired lymphatic system. This may be as a result of the lymphatic system not developing properly, or through damage or trauma. It can affect any part of the body but is most commonly seen in an arm or a leg. Although thought to be relatively uncommon, a recent study has estimated that at least 100,000 people in the UK may be affected by this condition. In order to understand how lymphoedema occurs, it is important to have an understanding of the lymphatic system in general - what it is and how it works. The two main types are Primary and Secondary.
For a full and better explanation of what Lymphoedema is all about visit The Lymphoedema Support Network
I have Lymphoedema with both of legs affected. It took a long time but it was finally diagnosed over 18 years ago following surgery and subsequent treatment for cancer. 1 in 4 women are at risk of developing lymphoedema. The situation is getting better in as much as cancer patients are now warned and thus given help in recognising the condition possibly developing. It is incurable so as a patient, you just have to live with it. Massive gaps in the care and treatment exist and vary from area to area as with lots of other illnesses.
I hope to use my Website and blog page to try and speed the word, to promote the awareness, lift the profile and try to raise money to help sufferers of what can be, a very distressing condition to live with. As a start to my campaign, The Tall Lady will be donating 2% of every £100.00 spent on my website. To start the ball rolling there are some Christmas cards produced for the Lymphoedema Support Network for sale. You can purchase these by going to Lymphoedema Support Network Xmas Cards.
